In the months and weeks leading up to the birth of our quadruplets, I had read numerous books, researched online, and corresponded with doctor's as well as other quad moms in regards many of the challenges we may face with our babies in the NICU.
The births of our other children were all quite a bit different than that we knew we were going to be faced with. Yes, our beautiful daughter Meadow spent all 5 of her days with us in the NICU down at Spectrum in Grand Rapids... but we were a special story and were therefore allowed special priveledges with our daughter during that time. The first night we were able to see Meadow, they allowed us to leave a small CD player with her & Aiden's Enya CD so she would not feel alone at night and the other times we were not able to be with her. And when we came back in the middle of the night, the wonderful NICU nurses had labeled her CD player "Meadow's Music" and were leaning over her playing it to softly as we walked in.... The second morning after Aiden & Meadow's birth, we were allowed to paint our little girl's toenails - I wanted her to feel 'Pretty in Pink' - because she was. After only 2-1/2 days Aiden was allowed to lay with his sister in her bed so they could once again feel each other's closeness... as they had done for nearly 36 weeks inside me. And after 3 days we were able to pick our daughter up and hold her in our arms. By the 4th day we were able to rock with Meadow and Aiden together, outside the confines of her bed, as every parent dreams of doing with their babies. And on the 5th day, as our baby girl Meadow was baptized, each of our family members that were with us were able to hold their granddaugther/niece and rock with her as well... Jeremy and I spent hours with our Meadow and Aiden in our arms together that day... We are so grateful for these time we had with our daughter... these precious memories and her amazing spirit are all that we have and we cherish them so close to our hearts. Remembering is hard, as the tears running down my face remind me... Ultimately, Jeremy and I knew why we were given these special "priviledges" with our Meadow Anne... and as estatic as we were to have them, a small piece of or hearts broke each time... knowing.... but the comfort in knowing that God had a better plan for our little girl and that she is with Him looking down on us and smiling... we do not question God's Plan for our Angel Meadow...
And now, here we are with our fragile little ones in the NICU again. But God has a much different plan for our family this time... our four babies are in this very special place to grow, to get healthy, and, above all, to rest until that day we are able to bring them all home with us. We are given no special priviledges because our babies are so delicate and therefore we must follow what the doctor's and nurse's tell us is best for each of them on any particular day. And it does change, day by day, sometimes hour by hour. The reality of having to hear "Today has been a rough day for... So we are leaving them alone as much as possible." (Read: Do your best not to disturb this baby at all right now. This includes whispering only and absolutely no touching.) is very tough to process when a mere 4 hours ago this baby might have been the one doing the best. We often want to ask "BUT WHAT HAPPENED?" but we know the answer, time and time again, is nothing specific. Through our tears, as we watch our babies take a step back, then a step forward, then 3 steps back, then... we are told time and time again that "This is to be expected for preemies. It is not out of the ordinary and we fully expect they will rebound within 24-48 hours once..." It rarely stops the tears, but we appreciate the sincere compassion in which our doctor's and nurse's address us with. I, as you may know, am a hugger... and so upon meeting each one of our children's doctor's or nurse's... well, I hug them. I know exactly how important their relationship and gentleness with our babies matters. We have seen both sides of the spectrum in the NICU. And my hope is that by opening up that door to our hearts and allowing myself to open up to them, they, in turn, will treat our babies a little more like their own... I truly believe it matters and building this relationship is absolutely critical with each and every one of our babies caregivers. And now, Jeremy and I both feel that the majority of them respond to us as if we have known them for years... not days. The hugs flow freely... we ask how each other are doing... and we MEAN it when we ask... on occasion, I have actually been followed out of the NICU by a nurse so that she could try to quiet my heartbroken tears with a hug... followed out of the NICU by a nurse so that she could tell me it really, truly IS going to be OK.
These people are a very special breed and Jeremy and I are eternally grateful they have been chosen to enter our lives as caregivers for our babies...
One of the hardest parts of our rollercoaster is feeling so completely void of any control with our babies health and happiness. I can barely stand to type the words... it is the hardest thing imaginable to watch your perfect little babies suffer... and not be able to do a single thing about it. On the good days, we now have the amazing pleasure of cradling our babies heads and bodies with our hands... and the occasional holding of their precious little hand... several times we have now been asked to help change their diapers... and, as of yesterday, help change their bedding - which is the ultimate emotional experience because we actually get to hold our babies above their beds while the nurse's do their work... granted, we are "holding" (more like suspending) them above their beds, and not in our arms or on our chests.... but we take so much pleasure in these times and each new experience.
We have been known to bend over to sing lull-a-byes to our children through the tiny isolette access holes for hours on end before we have to leave them at night... and one time, just one so far, I was actually able to smell one of our babies heads as I cradled it during his echo... please remember as you read this the first time you held your baby and leaned down to smell their little head... again, it is one of a parent's guilty pleasure's that we all take for granted until the day it is taken away from you. Is there many smells we experience as pure and heavenly as a newborn babies skin?
I think not.
All Jeremy and I have to soothe our babies is our voice, our smell, and our gentle touch from a far through two openings in these isolette's. And we long for the moment's we are allowed to share these precious times with our babies.
My last night in the hospital was a night that I will never forget. I walked into the NICU late at night to spend time with my babies... I knew these ultra-late night excursions were going to become much more difficult once I was released. And on this night upon entering our "quad corner" (that's our section of the NICU) I was horrified to find all three of our boys crying. Imagine this little cry... it's absolutely heartbreaking... you look at their little bodies writhing around... you look at all the tubes and cords attached to them and KNOW how uncomfortable they must be... these beautiful little things only know to cry when something isn't right... they are suffering... and my heart was absolutely shattered. As hard as the nurse's were trying, none of them were able to console our little boys that night.
I felt so helpless.
So empty inside.
But instead of standing back and continuing to watch in horror, I decided that I was going to do whatever I could (read: whatever they would let me do) to soothe our baby boys and let them know how much mommy loves them.
I started with Dane, our baby D. I approached the nurse and asked if I could try and she was so sweet to encourage me with a "Only a mommy can help these boys tonight. I know he'll respond to you."
Sometimes, it's the little things people say and do that have the biggest impact. And those words, maybe not so memorable to her, gave me the confidence and strength I needed that night to gently cradle each of my boys heads and feet and sing to them each until they were calmed and sound asleep again.
I was able to spend time with Dane, then Cameron, and then, suprisingly even little, fragile Brock, whom they had been very reluctant to let us touch for days... and they each responded so well to my touch and the sound of my voice... for once, I had an ounce of control and had been allowed to soothe my babies... thank you, thank you, thank you to each of their nurse's that night. Thank you for allowing me to have that time with each of them and reassure myself that as their mommy I DO have the ability to let them know they are loved... let them know they are not alone... let them know I am there with them... and sing them to sleep.
I understand that there are certain dangers in allowing too much stimulation to our delicate babies. But on this night, the power of my touch and the sound of my voice was the only way to their hearts... praise God for these memories... and for these four little miracles in our lives.
Never under estimate your own power to heal and love through touch...
Thank you all for your continued prayers for our beloved Summer, Brock, Cameron, and Dane. Today was a great day with all of them... today was a day of no tears, only smiles... I know we have the good Lord and each of you to thank for their health and our own strength to make it to this point.
Good night.
I hope you smile as you see this last picture of our beautiful Summer... before she had to go bad on the CPAP... how we enjoyed watching her gorgeous eyes on us... and we will again soon when she feels a little better.